|Posted by Colleena on November 16, 2012 at 10:45 AM||comments (0)|
Greetings!!! Its Holiday time---and more than anything this is a time whereyou visit and connect with family. This is a time of giving and an additional time of appreciation of everything and everyone.
Lately, I haven’t been posting any updates----and yes things are much better now and continuously getting better every day. But I realize I am not doing my part with this Life Lesson. Ewings Sarcoma and Childhood Cancer forced their ways in our lives---with no apologies or regard for what we had going on. They didn’t ask if it was a convenient time, they didn't knock softly on the door called Life----or thoroughly explain the physical,emotional, and financial impact they would undeniably make on our family. Cancer does not RSVP for a section of our lives, because there would NEVER be a invite to such a Battle.
The main reason I know I cannot just sit back and not post---is the very reason I even started posting updates to begin with. I do not take the Gift in this Life Lesson lightly. The gift we have been given is simple---an appreciation for each other and for Life. I can’t tell you how many timesI thank God a day---I’m just thankful for Everything. I understand about getting the word out. About bringing awareness to this Ewings Sarcoma and Childhood Cancer one person at a time for as long as I can.
Once upon a time, I did exactly what I was told not to do from Breanna's doctors. When she was diagnosed they thoroughly instructed me NOT to go on the internet and read personal stories about another child going through the same Cancer---because every child, treatment plan, and Cancer is different in some way. Well, as much as I respect her docs, allI heard was "blah, blah, blah"! And just because I was told NOT to do it-----Of course the rebel in me decided otherwise! :-)
I was a parent on a quest for info. I NEEDED to know and read otherstories of Childhood Cancer. I NEEDED to mentally prepare myself for whatever road and roadblocks that lay ahead. I NEEDED to know that there were others---others who survived and others that courageously battled. I NEEDED to read the odds, survival rates, and all. I NEEDED to know we were not fighting a losing battle. I simply NEEDED HOPE!
I am here and I will continue to post for anyone who is on that all too familiar quest for Ewings Sarcoma knowledge or for anyone that has theunwavering NEED to know, and most importantly to do my part to provide HOPE. A gorgeous four letter word that will do wonders once you believe and keep the faith. Soif you are newly diagnosed, Change the Game---take a moment and really feel sad, defeated, cry-GET it all OUT----stare Childhood Cancer in the face,declare Victory, and CLAIM the Health of your child.
|Posted by Colleena on September 19, 2012 at 10:15 AM||comments (0)|
So obviously---we left the hospital and hit the ground RUNNING!!! And that basically explains the exciting momentum our life has been in since our last update.
I cant begin to explain all of the many things that have happened over year ago. For starters, Bre is CANCER FREE!!!!!!! Thank GOD!!! She is back in school full time, she is walking beautifully, and she is a new child---she is genuinely Happy! And that means more to me than anything!
Ok, so I'll attempt a recap.....
Breanna participated in "Make A Wish"---she wished to go to Disney World--and boy did they EVER deliver on her dream!! We are talking Limo service to and from the airport, a 7 day stay in Kids Village (a lovely resort made only for "wish" kids and their families), and she was given the "Gold Key" to Disney! They spared no expense and made sure the memory will last a Lifetime! The kids were able to have ice cream for breakfast, cookies anytime, and they did a mock Holiday daily, oh and there was also NO waiting in lines for them to ride anything. We went November 2011, and during those seven days the kids got to experience Halloween, Christmas, 4th of July, and many more just Fun parties. It was so nice to take the time and watch the kids just enjoy themselves--It set a nice tone on moving forward and celebrating LIFE!
|Posted by Colleena on April 22, 2011 at 8:45 PM||comments (0)|
We have been catching up with an old, good , and true friend----REST! And boy, have I missed that beautiful and underrated friend! Its definitely something different knowing that we don't need to begin packing clothes for a weeks stay at the hospital. Or that we don't need to prep the kids on what days we will be here, and give them a basic run down of what to expect that week.The truth of the matter is that I can go on and on for all of the things that I am happy that we no longer need to do....So I will keep this simple. We are in a Thankful transition into life without chemo, hospital stays, or being absent from each other. Bre is on her last few days of isolation, so we are looking forward to eventually going to a Grocery store, a restaurant, a mall...Any public place without being overly cautious. Not that we plan to do a world tour of all things public, but Bre is certainly looking forward to walking anywhere in public and not needing to wear the surgical mask. Life is Beautiful!
|Posted by Colleena on April 15, 2011 at 1:40 PM||comments (1)|
Breanna rode a bike for the 1st time since her diagnosis!!! She is making so much progress so fast! We are So proud of her!!! The great news is that she will be able to continue riding at home. The next step is walking without her crutches...we are almost there!!! God is a miracle worker! She is anxiously waiting for CiCi to come here tonight. CiCi will be staying at the Hospital for the weekend, and Bre is literally counting down the hours until her twin gets here! Well, we are on our way to ride again soon, so I will update later!
|Posted by Colleena on April 14, 2011 at 1:20 AM||comments (0)|
We are all smiles! Giving all Honor and thanks to God! We are inpatient, and on Day 2 of 6 days! The red carpet has been rolled out for Bre up here! Everyone is congratulating her and wishing her well. A pink and green banner is taped to her door that reads "Way to go Breanna, Its Your Last Chemo!" Everyone has been signing it and bringing so much joy to her. And God has been sending the Angels her way----A complete stranger handed Breanna, $100!!!! Said he heard it was her last chemo, and he wanted her to feel special-----And let me tell you, I have Never seen that girl smile so BIG! :-) It just so happened that the hospital didn't have any rooms available for our admission---which meant we would have had to wait around for about 6 hours until one became available. Since the money was burning Bre's pockets so badly---she went crazy shopping! Lets just say she can now only afford a pack of gum....if its on sale! :-) But She enjoyed every last minute of it! After all the shopping, we went to a movie, and God was still at work as usual----When we were ready to pay for our tickets, we were told that it had already been taken care of by the customer in front of us! As it turns out, she had just completed her last chemo 2 weeks ago---she didn't even know that she just made Bre's 1st day of her last treatment that much more special! God is SO amazing!!!
And Bre took her 1st steps with both legs today! She hasn't been able to put weight on her right leg for 9 months, since she was diagnosed----but today that changed! She was cleared to use 30lbs of force with the leg, and she made 2 laps around the floor afterwards. Tomorrows goal is using a stationary bike-----we can't wait!!! I'll keep you posted, and post pics/ or video.
|Posted by Colleena on March 31, 2011 at 11:22 PM||comments (2)|
Okay, SO my new goal is to update this website every week....especially since she only has one more week of treatment left! lol Bre will go in the hospital on April 12th for her last treatment! We will be at Tx Childrens a total of 6 days. My thought is to make her last stay as special as possible---so please visit if you can, or send her a Care Message (look on the links page for info). They are hand delivered to her from volunteers, and she always is SO happy to get them!
I just cant believe how close we are to being done and how time has flown by so fast! I mean, this was last August when we started this battle...and it's true when you hear people say that Cancer changes lives....and not all for the negative. This journey has tremendously strengthened our family...and shown us the real importance in life...being thankful, happy, and blessed with the support of so many friends and family! We are also so thankful for her siblings---they have been so strong, and kept Bre strong as well! SO we love you Darius, Deonte, Cierra,Breanna and "active" Kaylen!!! We could not have been successful without God or you all in our lives!
Okay so on to the good news....Your Favorite Family (Us, for those of you who have to think about it!) is about to be doing B I G things!!! We were chosen as 1 0f 7 families to go on a luxury weekend retreat!!!! We will be flown to San Antonio by private jet, and picked up in a limo to travel for an hour to Hondu, Tx. There will be swimming, canoeing, fishing, bike riding, a safari tour ( where the zebras, Kangaroos, and giraffes can come up to the car) and much more! Heeeeeeeey!!!! Isn't God good!!! :-) This will be at the end of April, so I will keep you posted---for sure!
And look forward to hearing from us soon....we are having a "We did It!" party at the end of May. We are celebrating life, love, and family, friends, and thankfully no more Chemo! We have gone through this together..and we will all party together!!! Will send info soon. Take care until next time!
|Posted by Colleena on January 29, 2011 at 3:03 AM||comments (0)|
My goodness, its been so long since I've actually worked on the site, that I don't know where to begin! If I say nothing else, I want you all to know that GOD has been continuously Blessing our family! He has truly been so good that I cant tell it all! I'm thinking if I get ambitious enough, I'll create a "Testimony" page and tell you everything----but lets be real, I'm having a hard time keeping up with the pages we have! :-) Anyhow, we are so excited to begin the countdown of our last 6 treatments! We began this journey just last August and her continual progress and recovery is just phenomenal!
Our Bre had a rough patch after surgery---things were painful for her, her mobility was limited, and as any child would have been- she was frustrated and scared. Following surgery, she used a walker to help her walk short distances and her wheelchair for everything else. Recovery from such an intense surgery has been challenging to say the least. I'm proud to say that Bre no longer uses a walker and very rarely uses her wheelchair! She mainly uses her crutches and is Way too good on them. We are always telling her to slow down because she just about runs on them! She has Physical Therapy when she's inpatient, and from the looks of things, she will be learning to walk soon! I'll post pics of her leg and more updates soon...until then, Be Blessed!
|Posted by Colleena on December 1, 2010 at 9:14 PM||comments (0)|
|Posted by Colleena on November 29, 2010 at 10:37 PM||comments (0)|
Tomorrow is Brianna's Big Day! She will have surgery to remove the tumor in her femur, replace her port, and place the implant. God has been so good to us, and given her a special platform:
1. Breanna will be the 1st Black child in TX to have the surgery
2. She will only be the 3rd child in TX to have this surgery
3. She will be the first child in TX with Ewing's Sarcoma to have this surgery
God is in control, and I am thankful for his grace! And while we are counting miracles, I also want you to know that all her tests results show that the chemo has shrunk the tumor, and has not spread anywhere else in her body! Thanking God for all his many Blessings! Anyhow, we are asking all our family, friends, and friends of friends to say a special prayer for Breanna tomorrow. We are praying for complete healing, and a full, speedy recovery. We are also in need of Strength. For hers and ours- we pray that God gives us the guidance, wisdom, ability, and faith to care for her and our family. Thank you all for your continued support and prayers!
|Posted by Colleena on November 11, 2010 at 6:21 PM||comments (2)|
So we are a few days into our last chemo treatment before surgery. Her limb salvage surgery is on November 30th! That will be such a BIG day!!! By the grace of God, the Cancerous Tumor will be removed from her femur bone and she will also have the prosthetic placed inside her leg. At the same time, she will also have her port (central line under her skin) replaced. The current port has been having technical difficulties, which in turn lengthens her admissions and delays her treatments. The doctors have estimated that the surgery will take 9 hours, so we are anxiously counting down the days! Well, we are on our way to the Play Room...Breanna loves to play the Wii in there! Be Blessed!
|Posted by Colleena on October 29, 2010 at 1:26 PM||comments (0)|
By the grace of God we came home one day sooner than usual. Tx Children's Hospital is the best! Since this cycle was normally pretty tough on her with nausea,they changed the way they give it to her to minimize her symptoms. The chemo would normally have run continuously for 48 hours, but now they give her the same chemo in (2) 30 minute infusions. The change also resulted in us being able to leave sooner, so YEAH!!! We have been home now for a day, and I'm glad she hasn't been feeling sick, or having the usual jaw pain. PRAISE GOD! While she's not nauseated, she is resting more- which is understandable-she's only one day out of treatment- So I'm more than prepared for a Spongebob Marathon today!
|Posted by Colleena on October 26, 2010 at 10:55 PM||comments (1)|
Received the Best News Today! For those of you who don't know, Cierra (Breanna's twin sis) had a Biopsy performed last week. She had a mole on the bottom of her heel that had the attributes of skin cancer and was recommended to have it removed.We have been in deep thought and heavy prayer awaiting the results---I am MORE than THANKFUL to announce that her results are Negative for Cancerous cells!!! GOD is GOOD!!!