|Posted by Colleena on November 16, 2012 at 10:45 AM|
Greetings!!! Its Holiday time---and more than anything this is a time whereyou visit and connect with family. This is a time of giving and an additional time of appreciation of everything and everyone.
Lately, I haven’t been posting any updates----and yes things are much better now and continuously getting better every day. But I realize I am not doing my part with this Life Lesson. Ewings Sarcoma and Childhood Cancer forced their ways in our lives---with no apologies or regard for what we had going on. They didn’t ask if it was a convenient time, they didn't knock softly on the door called Life----or thoroughly explain the physical,emotional, and financial impact they would undeniably make on our family. Cancer does not RSVP for a section of our lives, because there would NEVER be a invite to such a Battle.
The main reason I know I cannot just sit back and not post---is the very reason I even started posting updates to begin with. I do not take the Gift in this Life Lesson lightly. The gift we have been given is simple---an appreciation for each other and for Life. I can’t tell you how many timesI thank God a day---I’m just thankful for Everything. I understand about getting the word out. About bringing awareness to this Ewings Sarcoma and Childhood Cancer one person at a time for as long as I can.
Once upon a time, I did exactly what I was told not to do from Breanna's doctors. When she was diagnosed they thoroughly instructed me NOT to go on the internet and read personal stories about another child going through the same Cancer---because every child, treatment plan, and Cancer is different in some way. Well, as much as I respect her docs, allI heard was "blah, blah, blah"! And just because I was told NOT to do it-----Of course the rebel in me decided otherwise! :-)
I was a parent on a quest for info. I NEEDED to know and read otherstories of Childhood Cancer. I NEEDED to mentally prepare myself for whatever road and roadblocks that lay ahead. I NEEDED to know that there were others---others who survived and others that courageously battled. I NEEDED to read the odds, survival rates, and all. I NEEDED to know we were not fighting a losing battle. I simply NEEDED HOPE!
I am here and I will continue to post for anyone who is on that all too familiar quest for Ewings Sarcoma knowledge or for anyone that has theunwavering NEED to know, and most importantly to do my part to provide HOPE. A gorgeous four letter word that will do wonders once you believe and keep the faith. Soif you are newly diagnosed, Change the Game---take a moment and really feel sad, defeated, cry-GET it all OUT----stare Childhood Cancer in the face,declare Victory, and CLAIM the Health of your child.